Dr. Rozzelle met with us this morning and went over very thoroughly what is ahead of us. His plan is Anesthesia will get her about 7:30 and bring her down to pediatric surgery floor. Anesthesia explained to us that this time can vary depending on the changes made 'today' on cases that come in. Malaya, as of right now, is case #2 so depending how his surgery goes with #1, also depends on the timing that Malaya actually goes back. She will most likely go straight to ICU afterwards but if all goes well, she may simply go to recovery room. Thank You Lord for your perfect timing again...this hospital opened this new facility on August 4th and this facility has "family friendly" ICU units so that I can stay right beside her and not have to wait on visiting times! I know I am about to start on alot of information so Lord I just pray for your people right now, as they read You will fill them with a sound mind...I speak clarity into their understanding so that their prayers are exact and specific! I believe this is so important in prayer, You want us to be specific! Just like a dear friend reminded me that, yes God has given us the power to speak to this tumor to be removed but also speak to it to be detached!!! So that Malaya's little brain, veins , glands ... All that you created her with Lord, stays in tact! Please pray for us today, to consume this information about our sweet baby in a healthy spiritual way, not a fearful and doubtful way! Keep our eyes on You God and not on the visual of what is going to happen to our baby through surgery!
Okay...his incision will start at the front of Malaya's right ear(face side) and will direct all the way back in an upward way to the top of her head then along the center of her hairline in the front. He will lay this area back and lift the brain and enter under the brain and optic nerve and go between the frontal and temporal lobes. Although the tumor is centralized, it does tend to appear to be more to the right. His reason to think this is because it is very clear in the MRI that the hypothalamus and the pituitary stalk are within this mass. It is not clear if either/or is attached but the pituitary stalk does run through it.
Risk 1:
With the pituitary gland being our 'master gland' for hormones, the stalk in which the brain sends signals through to the gland is extremely important! Prayer warriors please send prayers up specifically to this area and command this tumor to not bring forth danger during surgery! Apply the blood of Jesus over every vein vessel artery and specifically the pituitary stalk and hypothalamus! The doctor stressed that any movement of him in there trying to remove can cause pressure to this stalk with the end result being that it would be impossible to keep. This will cause hormone problems for the rest of her life, in which meds would be an extreme important part of every day living! There are several hormones but the main one of concern for Malaya would be the salt & water level, if these levels are not perfect it can cause alot of problems, can even be fatal. Another is her growth hormone. If the hypothalamus becomes injured during surgery, it can cause affects on her hunger. She will always be hungry. He has seen cases where parents had to lock food up due to the extreme eating disorder. Bottom line is that Malaya would not be able to regulate her own hormones.
Risk 2:
There are optic nerves crossing over to pituitary gland. In the event of his movement of removing can cause any of these to snap and end result would be possible blindness. We speak the power of the blood of Jesus into these nerves to stay strong!
Risk 3:
Blood vessels are already stretched in areas so again, if any are snapped, a possible stroke could occur and cause problems for that side of her body, such as arms, legs and face structure. We have already prayed for Your hands, God, to move in the doctors hands and for You to give him a sound mind, the mind of Christ! Let his actions be just as precise and perfect as Your timing ALWAYS is! In Jesus Name!
Risk 4:
Just working around vessels can cause tear and if an aneurism is formed during this, then of course it will be kept up with through imaging on her follow up appointments.
Other potential risks are:
Blood transfusion
Seizures
Chance of infection
Develop hydrocephalus...excess water accumulation in or around the brain
Our potential risks are in Your hands God and we bind any entrance of satan that come into these risks! Every evil plan he has, we call it void and null In the Name of Jesus! Satan you cannot and will not cross the blood line...in Jesus Name.
Anesthesia Review:
Malaya will have 3 IVs ... A central line, most likely in neck but could have to be placed in another locations such as chest and leg, anesthesia will decide once they get in there. Then another IV, again location determined by anesthesia. An arterial line, placed mostly in a hand or foot. This line is essential for blood pressure monitoring and great to draw blood from along with so much more that anesthesia can sit and look at a monitor to show them ANY activity that should not be going on! There will be a breathing tube in her that will control her oxygen and gas. This tube is essential in brain surgeries to give doctors what they need for the brain such as dioxide. This tube will most likely be left in until she is absolutely in the clear and to not be alarmed when we see her because it is just a precaution and expect swelling of her face due to the placement of her head and body being face down for best access to the tumor location.
We speak YOUR preciseness and perfectness into the anesthesiologists and the nurse who will be right by Malaya's side from beginning to end! Let Their Eyes be Your eyes in Jesus Name!
The tumor itself:
***Some tumors are soupy and can be "sucked" out.
***Some tumors can be fleshy & more consistency in which they have specific tools to cut & remove with.
***If malignant, chemotherapy is always first option and children seem to do well. Wants to stay away from radiation at all possible.
***If benign, the brain is an area that even a benign tumor can "act" malignant because of the location. Because of everything being so compact. So this explains why the Oncologist felt like there would be therapy beyond this regardless the type if tumor. Again, chemotherapy will be first option.
We claim the power you have given us to speak to this tumor that it be DETACHED and REMOVED! That none of the above will apply! YOUR power will be the ONLY thing that will apply in this area!
THE FACT THAT THERE ARE LITTLE AND NO SIGNS OF EDEMA OR SWELLING GIVES HIS GOOD ASSURANCE THAT THIS IS A BENIGN TUMOR BECAUSE WITH MALIGNANT YOU SEE ATTACKING OF GLAND BY SHOW OF SWELLING AND PRESSURE! THIS ONE IS SHOWING MORE PUSHING OF GLANDS AND NERVES!
GOD WE REST ON YOUR ASSURANCE TODAY IN THE NAME OF JESUS!
Surgery / Recovery / ICU time frames and updates:
***Surgery is pending other cases that arise from now until then, in which we can call tonight for a more accurate schedule but she is case #2 and starting time for case #1 is 8am but could be a short surgery.
***Recovery is normally a couple of hours, just depending on surgery results
***ICU...they really estimate with Malaya being a few days, IF hormone complications arise then it will be at least 2-3 weeks.
***Updates will be given throughout the surgery
***If treatments is the result from this surgery, then it is 'possible' that she would be released before oncologist start the treatments
I so hope I have been clear. The oncologist is here now!
Keep Praying ... Y'all Are MOVING Mountains with our Mighty God!
We love you all
Ingrid
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