Wednesday, September 12, 2012

Update on Baby Malaya

Happy Smiles for her present to Mamaw Alba on her birthday!!!!
 
 
 
We Have Seen the Real Malaya today more than any other day since all the surgeries she started!
This was Mothers Best Birthday Gift Ever when she talked to Malaya and Got A Big Smile!!! Thank you for all your prayers!! It was a wonderful restful night! When Malaya took her 2:00 feeding this morning she started with some activity in her arm but Dr came in and evaluated before giving her the Ativan...
which is what they decided to use for 'backup' if Malaya got in the shape she did last night! After her bottle, she went right back to sleep & arm stopped! I can't tell u the feeling I had to look up at her from the recliner and NOT see her body in jerks & movements that was just making her miserable! God Always Intervenes...Not when we want it but when its MUCH Needed! My request last night for Malaya was rest and He graciously granted it! I think I needed it just as bad because for the first time since I've been here...I let a nurse give her her oral meds and a bottle this morning!! The nurse was so sweet all night doing all she can so mother and I could rest! Malaya's sodium did drop to 128 thru the night but she brought it back up to 136 by mid morning! Malaya's blood count was at 7 this morning so we are now in the middle of 3 hour blood transfusion then she will start her 2 chemos which will be an 8 hour duration all together! Long day ahead so please pray and hold us close to your heart for inner strength that only God can bring through His People Coming Together & Holding Each Other Up like He has called us all to do!

Tuesday, August 28, 2012

Surgery is finished

Update 2:10: they have completed surgery & the surgeon is now talking to mom and Jeff! They said that Malaya is doing good right now. Malaya is definitely staying in ICU tonight which is normal because they want to keep a very close watch on her. They said she may have to stay in ICU for more than one night depending on how Malaya is! Please pray that when Malaya wakes up that she will have peace & comfort! Thank you all for your prayers! Please continue!

Update

From Ingrid: Update of this morning:  They took Malaya back between 8:30 and 9:00 and due to her complications of her veins...they were unable to draw blood last night so that has to be done first which takes 45 minutes.  After match, is made and blook supply is in the room ready, along with everything else...it possibly will be 2 hours from when the initial start of surgery is! Anesthesia has just come to us to sign the release for them to do the central line! Pray, Pray, Pray!!!!!! I have so much faith in ya'lls prayers!! Ya'll have carried us thru this! YES!!!! All of you are a part of this so PRAY!!! LOVE YOU ALL!!!!  Ingrid and Jeff
We've had a little complication getting this posted so during this time, they have paged and informed us that central line is in and Malaya is still doing fine. Surgery should start soon! 

 
Malaya Sends this Message Out so As You Read Look at this Angel as if she is speaking out to You! If only you could have experienced first-hand to see the peace that God has carried her thru with! In spite of the meds that normally bring on fuzziness and hyperness and lack of hunger...Malaya has continued with her nature from when she was born. Not a moment of crying unless she was enduring pain! It has amazed my spirit and warmed my heart!
JEREMIAH 1:4-10
The word of the Lord came to me, saying "before I formed you in the womb I knew you, before you were born I set you apart; I appointed you as a prophet to the nations." Alas, Sovereign Lord," I said, "I do not know how to speak; I am too young." But the Lord said to me"Do not say, "I am too young." You must go to everyone I send you to and say whatever I command you. Do not be afraid of them, for I am with you and will rescue you," declared the Lord. Then the Lord reached out his hand and touched my mouth and said to me, "I have put my words in your mouth. See, TODAY I appoint you over nations and kingdoms to uproot and tear down, to destroy and overthrow, to build and to plant."
GOD ...you have already used Malaya to live out your word! She has done more in a week than some of us have in a lifetime! God, bless the people of Belmont & all around the world who "Set the Atmosphere" for You and Your angels last night at 7:00! It was no coincidence that the nurse had failed to bring me the consent form yday and when she finally did and I signed it and looked at the clock to write it down on the form ... it was 7:00!!!! God I am believing that as I signed that consent form to hand her over & your people started crying out with sincere hearts ...that You looked upon us with a glad heart for Your Will was being done thru all your saints! And this little baby girl that You hand picked to be the strong one to lead Your people...will have Your mercy and grace on her during surgery! God, Jeff and I have failed you  Miserably and God we recognize how our disobedience as a parent, as an individual, as a friend has brought us to this mountain before us! God, we ask that You search our heart today, that if ANYTHING is in it that is not of You, God if its pride bitterness unforgiveness anger ...whatever DELIVER US TODAY! LET YOUR PRAYER WARRIORS SEEK THEIR HEARTS FOR ANYTHING SO THAT THIS REQUEST DOESNT GO UNANSWERED! Dig deep down in our heart soul and spirit and my prayer is that all You see is Sincerity & Obedience!! God you have said in Your Word to come with a sincere heart and You will answer! Let Your people know the seriousness of this request! God You have convicted and Humbled Jeff and I , not just to our knees...but our faces planted down at Your feet crying out for Your touch! You came down so mighty in Malayas room this morning! I had an intervention of Your touch like never before! And I will claim again and testify before Your people that as a Mother and Jeff as a Father, as hard as it is to grasp the strength to speak these words out, we speak them out to Your People...."WE THANK YOU FOR CHOOSING MALAYA TO BE YOUR MIGHTY SERVANT! WE THANK YOU FOR THE LIVES SHE IS TOUCHING! WE THANK YOU FOR THIS MOMENT THAT HAS CHANGED OUR DIRECTION OF LIFE AND HOW WE THINK AND HOW WE SERVE YOU! WE THANK YOU THAT IT WAS US THAT YOU PICKED TO BE HER PARENTS! WE THANK YOU FOR THIS TERRIBLE HORRIBLE TIME IN OUR LIFE BECAUSE YOU HAVE FOREVER MORE SHINED YOURSELF UPON OUR FACES THAT WE WILL NEVER BE BLINDED BY THE WORLD & BUSYNESS THAT SATAN USES TO CONFUSE & DISTRACT US! Move God! MOVE GOD! MOVE GOD TODAY ON YOUR PEOPLE SO THAT YOUR PLAN IS BEING DONE ACCORDINGLY! MOVE ON YOUR THE DOCTORS AND NURSES THAT YOU HAND PICKED! WE THANK YOU FOR GOD-BELIEVING PEOPLE IN THAT SURGERY ROOM THAT ALLOWED OUR PEAYER CLOTH BLANKET TO BE IN THE ROOM! WE STAND ON YOUR PEACE THAT SURPASSES ALL UNDERSTANDING TODAY IN THE NAME OF JESUS! THE BLOOD IS APPLIED AND SATAN IS BOUND IN JESUS NAME! AMEN & AMEN!

11:00 a.m. Surgery has started.

Monday, August 27, 2012

Thank you

To all who came out to the Prayer Meeting, for those that held their own prayer meeting, to those that chose 7 p.m. to pray for Malaya tonight, and to the Belmont Police Department; Thank you so very much! It was amazing at the number of people who came out tonight for such a special cause. Bless you all!




Info on the hospital

Mailing address for the hospital:
Benjamin Russell Hospital for Children
1600 7th Avenue South,
Birmingham, AL 35233.
physical address is 1601 5th Avenue South, Birmingham, AL 35233
visiting hours are 9:00 a.m. to 9:00 p.m.  Please be sure to check with your nurse for complete visitation guidelines.
Everyone entering the Benjamin Russell Hospital for Children MUST have one of the following: Patient ID bracelet, Employee ID badge, Vendor badge or a Guest sticker. Guest stickers and information about vendor badges are available at the Information Desks.

Malaya's Surgery Plan

Dr. Rozzelle met with us this morning and went over very thoroughly what is ahead of us. His plan is Anesthesia will get her about 7:30 and bring her down to pediatric surgery floor.  Anesthesia explained to us that this time can vary depending on the changes made 'today' on cases that come in.  Malaya, as of right now, is case #2 so depending how his surgery goes with #1, also depends on the timing that Malaya actually goes back. She will most likely go straight to ICU afterwards but if all goes well, she may simply go to recovery room. Thank You Lord for your perfect timing again...this hospital opened this new facility on August 4th and this facility has "family friendly" ICU units so that I can stay right beside her and not have to wait on visiting times! I know I am about to start on alot of information so Lord I just pray for your people right now, as they read You will fill them with a sound mind...I speak clarity into their understanding so that their prayers are exact and specific! I believe this is so important in prayer, You want us to be specific! Just like a dear friend reminded me that, yes God has given us the power to speak to this tumor to be removed but also speak to it to be detached!!! So that Malaya's little brain, veins , glands ... All that you created her with Lord, stays in tact! Please pray for us today, to consume this information about our sweet baby in a healthy spiritual way, not a fearful and doubtful way! Keep our eyes on You God and not on the visual of what is going to happen to our baby through surgery!
Okay...his incision will start at the front of Malaya's right ear(face side) and will direct all the way back in an upward way to the top of her head then along the center of her hairline in the front. He will lay this area back and lift the brain and enter under the brain and optic nerve and go between the frontal and temporal lobes. Although the tumor is centralized, it does tend to appear to be more to the right. His reason to think this is because it is very clear in the MRI that  the hypothalamus and the pituitary stalk are within this mass. It is not clear if either/or is attached but the pituitary stalk does run through it.
Risk 1:
With the pituitary gland being our 'master gland' for hormones, the stalk in which the brain sends signals through to the gland is extremely important! Prayer warriors please send prayers up specifically to this area and command this tumor to not bring forth danger during surgery! Apply the blood of Jesus over every vein vessel artery and specifically the pituitary stalk and hypothalamus! The doctor stressed that any movement of him in there trying to remove can cause pressure to this stalk with the end result being that it would be impossible to keep. This will cause hormone problems for the rest of her life, in which meds would be an extreme important part of every day living! There are several hormones but the main one of concern for Malaya would be the salt & water level, if these levels are not perfect it can cause alot of problems, can even be fatal. Another is her growth hormone. If the hypothalamus becomes injured during surgery, it can cause affects on her hunger. She will always be hungry. He has seen cases where parents had to lock food up due to the extreme eating disorder. Bottom line is that Malaya would not be able to regulate her own hormones.
Risk 2:
There are optic nerves crossing over to pituitary gland. In the event of his movement of removing can cause any of these to snap and end result would be possible blindness. We speak the power of the blood of Jesus into these nerves to stay strong!
Risk 3:
Blood vessels are already stretched in areas so again, if any are snapped, a possible stroke could occur and cause problems for that side of her body, such as arms, legs and face structure.  We have already prayed for Your hands, God, to move in the doctors hands and for You to give him a sound mind, the mind of Christ! Let his actions be just as precise and perfect as Your timing ALWAYS is! In Jesus Name!
Risk 4:
Just working around vessels can cause tear and if an aneurism is formed during this, then of course it will be kept up with through imaging on her follow up appointments.
Other potential risks are:
Blood transfusion
Seizures
Chance of infection
Develop hydrocephalus...excess water accumulation in or around the brain
Our potential risks are in Your hands God and we bind any entrance of satan that come into these risks! Every evil plan he has, we call it void and null In the Name of Jesus! Satan you cannot and will not cross the blood line...in Jesus Name.
Anesthesia Review:
Malaya will have 3 IVs ... A central line, most likely in neck but could have to be placed in another locations such as chest and leg, anesthesia will decide once they get in there. Then another IV, again location determined by anesthesia. An arterial line, placed mostly in a hand or foot. This line is essential for blood pressure monitoring and great to draw blood from along with so much more that anesthesia can sit and look at a monitor to show them ANY activity that should not be going on! There will be a breathing tube in her that will control her oxygen and gas. This tube is essential in brain surgeries to give doctors what they need for the brain such as dioxide. This tube will most likely be left in until she is absolutely in the clear and to not be alarmed when we see her because it is just a precaution and expect swelling of her face due to the placement of her head and body being face down for best access to the tumor location.
We speak YOUR preciseness and perfectness into the anesthesiologists and the nurse who will be right by Malaya's side from beginning to end! Let Their Eyes be Your eyes in Jesus Name!
The tumor itself:
***Some tumors are soupy and can be "sucked" out.
***Some tumors can be fleshy & more consistency in which they have specific tools to cut &    remove with.
***If malignant, chemotherapy is always first option and children seem to do well. Wants to stay away from radiation at all possible.
***If benign, the brain is an area that even a benign tumor can "act" malignant because of the location. Because of everything being so compact. So this explains why the Oncologist felt like there would be therapy beyond this regardless the type if tumor. Again, chemotherapy will be first option.
We claim the power you have given us to speak to this tumor that it be DETACHED and REMOVED! That none of the above will apply! YOUR power will be the ONLY thing that will apply in this area!
THE FACT THAT THERE ARE LITTLE AND NO SIGNS OF EDEMA OR SWELLING GIVES HIS GOOD ASSURANCE THAT THIS IS A BENIGN TUMOR BECAUSE WITH MALIGNANT YOU SEE ATTACKING OF GLAND BY SHOW OF SWELLING AND PRESSURE! THIS ONE IS SHOWING MORE PUSHING OF GLANDS AND NERVES!
GOD WE REST ON YOUR ASSURANCE TODAY IN THE NAME OF JESUS!
Surgery / Recovery / ICU time frames and updates:
***Surgery is pending other cases that arise from now until then, in which we can call tonight for a more accurate schedule but she is case #2 and starting time for case #1 is 8am but could be a short surgery.
***Recovery is normally a couple of hours, just depending on surgery results
***ICU...they really estimate with Malaya being a few days, IF hormone complications arise then it will be at least 2-3 weeks.
***Updates will be given throughout the surgery
***If treatments is the result from this surgery, then it is 'possible' that she would be released before oncologist start the treatments
I so hope I have been clear. The oncologist is here now!
Keep Praying ... Y'all Are MOVING Mountains with our Mighty God!
We love you all 
Ingrid

Sunday, August 26, 2012

Prayer Meeting for Malaya - Wood Industries - Belmont, MS

Monday August 27, 2012 @ 7:00pm For everyone that will, lets join together in prayer for Malaya at Wood Industries,INC Parking lot in Belmont, MS. Matthew 18:20 "For where two or three are gathered together in my name, there am I in the midst of them." I have NO DOUBT that if we all gather in his name and pray with our whole heart, that Tuesday this mass will be GONE! My God is the Great Physician and Healer and I know that he can do this. I hope to see you all there. Please repost this and let everyone know. God Bless and Keep the Faith! Organzied by Kayla Dill